RESOURCES FOR ALL: Find the conversation solutions that meet your personal or professional need
Coda Directory:
The Consumer Reports of End of Life Conversation Tools
Are you looking for tools about end of life care and long term planning? This Consumer Resource Tool from Coda Alliance is your answer. Coda Alliance's goal is to facilitate conversations for different people with different needs. Use this tool to help you find just the resource for you.
RESEARCH ARTICLES by Coda Cofounder Dr. Elizabeth Menkin
Personal Reflection “Nourishment While Fasting”
Elizabeth S. Menkin, M.D. JOURNAL OF PALLIATIVE MEDICINE
Volume 13, Number 10, 2010
© Mary Ann Liebert, Inc.
DOI: 10.1089/jpm.2010.0138
“Go Wish: A Tool for End-of-Life Care Conversations”
Elizabeth S. Menkin, M.D.
JOURNAL OF PALLIATIVE MEDICINE
Volume 10, Number 2, 2007
© Mary Ann Liebert, Inc.
DOI: 10.1089/jpm.2006.9983
Case Discussion in Palliative Medicine “Artificial Nutrition and the Public Guardian”
Elizabeth S. Menkin, M.D.
JOURNAL OF PALLIATNE MEDICINE
Volume 7, Number 5, 2004
© Mary Ann Liebert, Inc.
OTHER RESEARCH ARTICLES
Go Wish card game-exploring end-of-life wishes of patients in oncology palliative care: a qualitative study.
Paiva BSR, Mingardi M, de Almeida LF, de Camargos MG, Valentino TCO, Julião M, Paiva CE. Ann Palliat Med. 2024 Jan;13(1):31-41.
doi: 10.21037/apm-23-381. Epub 2023 Dec 6.PMID: 38073298 https://pubmed.ncbi.nlm.nih.gov/38073298/
Effects of the Heart to Heart Card Game for Patients with Advanced Cancer Receiving Home-Based Palliative Care: A Clinical Randomized Controlled Trial
Jiayi Du 1 , Ling Fu 2 , Jiaxin Cui 1 , Zifen An 1 , Pei Fang 1 , Lanhui Tan 1 , Xianmei Meng 1 , Liping Yu 1 Int J Environ Res Public Health. 2022 May 17;19(10):6115.
doi: 10.3390/ijerph19106115.
Translation and Cultural Adaptation of the Go Wish Game: Thinking About Personal Values to Promote Advance Care Planning
Marta Perin, MA,1,2 Silvia Tanzi, MD, PhD,3 Carlo Botrugno, PhD,4 Chelsi Craddock, BS,5 Elisabeth Menkin, MD,6 Carlo Peruselli, MD,7 and Ludovica De Panfilis, PhD1
JOURNAL OF PALLIATNE MEDICINE
Volume 25, Number 10, 2022
© Mary Ann Liebert, Inc.
The Cultural Adaptation of the Go Wish Card Game for use in Flanders, Belgium: a public health tool to identify and discuss end-of-life preferences.
Go Wish Cards Research Articles (references from Dupont, C., Smets, T., Monnet, F. et al. BMC Public Health 22, 2110 (2022). https://doi.org/10.1186/s12889-022-14523-9)
Identifying End-of-Life Preferences Among Chinese Patients with Cancer Using the Heart to Heart Card Game
Tong Li, MSc, RN, Xianbo Pei, PhD 1 , Xiaoli Chen, PhD 1 , and Shuqin Zhang, MSc, RN 2
American Journal of Hospice and Palliative Medicine®
Volume 38, Issue 1, January 2021, Pages 62-67 © The Author(s) 2020, Article Reuse Guidelines https://doi.org/10.1177/1049909120917361
Values and preferences for future end-of-life care among the indigenous Sámi
Lena Kroik RN PhD, Malin Eneslätt RN PhD, Carol Tishelman RN PhD, Krister Stoor PhD, Anette Edin-Liljegren BSc PhD
First published: 28 November 2021https://doi.org/10.1111/scs.13047
Nurse-led patient-centred intervention to increase written advance directives for outpatients in early-stage palliative care: study protocol for a randomized controlled trial with an embedded explanatory qualitative study
Catherine Busnel, Florian Dufour, Sophie Pautex, Laurence Séchaud http://orcid.org/0000-0003-1308-1631Katia Iglesias1, https://doi.org/10.1136/bmjopen-2020-037144
Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: action research within the DöBra research program.
D Tishelman C, Eneslätt M, Menkin E, Lindqvist O. Death Stud.2019;20:1–13.
Respecting Patient Choices: Using the ’Go Wish' Cards as a Teaching Tool
Hibah Osman1, Katia El Jurdi2, Ramzi Sabra3 and Thalia Arawi4 Correspondence to Dr Thalia Arawi, Salim El-Hoss Bioethics Program, Faculty of Medicine and Medical Center, American University of Beirut PO Box 11-0236, Beirut, Lebanon; [email protected] https://doi.org/10.1136/bmjspcare-2017- 001342
Go-wish Pediatrics: Pilot Study of a Conversation Tool in Pediatric Palliative Care.
Meghan Potthoff, PhD, CPNP-AC, & Mary Minton, PhD, RN, CNS, CHPN
J Pediatric Health Care. 2017;31(4):431–2.
Feasibility of Discussing End-of-Life Care Goals with Inpatients Using a Structured, Conversational Approach: the Go Wish Card Game.
Lankarani-Fard A, Knapp H, Lorenz KA, Golden JF, Taylor A, Feld JE, et al. J Pain Symptom Manag. 2010;39(4):637–43.
Coda Alliance wishes to acknowledge Patricia Cotton, Attorney at Pillsbury Winthrop Shaw Pittman, LLP. Patty has given generous dedication of her time helping our non-profit organization with intellectual property protection; trademark and patent protection. We have been able to have the GoWish cards translated into other languages and iterations and without her guidance to oversee that process; that work would have been difficult to say the least.
The goal of the Coda Alliance is to continue to make a difference in Advance Health Care Planning. With the help of supporters such as Patty we will continue to see improvements in “easier, early end-of-life conversations” with the GoWish cards.
Download Advance Directives and POLST forms here
MedicAlert®Application —"DNR" Emblem
Emergency Medical Services
Pre-hospital Do Not Resuscitate (DNR) Form
Instructions for completing the California Advance Health Care Directive form
California Advance Health Care Directive
Including Power of Attorney for Health Care
POLST : Physician Orders for Life-Sustaining Treatment is a form that specifies the types of medical treatment that a seriously ill patient wishes to receive.
Links to General Resources
- Journal of Pediatric Healthcare - Research Study "Go Wish Pediatric: Pilot Study of a Conversation Tool
- Gowish.org Provides a free online interactive GoWish cards game.
- Americans For Better Care Of The Dying
ABCD provides consumer education and advocacy for public policy issues. - Caring.com
Destination for caregivers seeking information and support as they care for aging
parents, spouses, and other loved ones.
Represents a unique opportunity for American healthcare organizations to educate their
communities on end-of-life issues
Promotes the benefite of public cord blood
Is a not-for-profit hospice and grief care organization
NSLPN provides all types of Senior Living Professionals a premier online industry
resource for Senior Care Jobs, News and Community. Also see NSLPN Career Center
- Palliative Care Policy Center
PCPC provides free online education content related to quality improvement for healthcare organizations. - Pallium India
A model for compassionate, high quality palliative care, Pallium India brings support and relief to those in pain
through its network of care centers.
Comprehensive consumer health and medical library, free and open to the public.
Large archive of professional resources.
Provides guidance, tools, and resources to help get "the conversation" started.
- Transcend Translations Have donated plain language and translation services for the GoWish cards in Spanish
